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Boston International Turner Syndrome Summit


Directors / Governance



Remote Options

Hybrid (Some In-Person Required)

Cause Type

Youth Development


Bringing young people with Turner syndrome together for fun, enriching experiences that foster independence and community.

We serve

Individuals from all over the world who have Turner syndrome between the ages of 12-19.

Our greatest accomplishment last year

returning to in person programming!


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Reasons to serve on our board

The individuals we serve are often socially isolated, having met few if any other people with this rare chromosomal disorder.  Most have social skills deficits, making it even more difficult to connect with their peers during those important middle school and high school years. When they join one another at BITSS, they bond with one another almost immediately, and form life long friendships. They learn more about their condition and about how to advocate for themselves with medical professionals. They also learn more skills for independence. Seeing the transformation that occurs in one week is life changing for those who form and run the program as well!

Our ideal candidate

Someone with the time and interest necessary to work independently as well as with a team to build our program and execute it each year. We are a working board, all volunteer based. We need board members who are passionate about supporting the TS Community and who are self-starters / reliable.

Our current board size


Time commitment

role dependent. Typically 2-3hours per week.

Where we meet

How often we meet

remotely, once per month, on zoom

Contact name

Lori Harris, President

Contact email

Contact phone


Date posted

January 23, 2023